“We were told not to Google Sanfilippo until we met with the doctor the next day, any parent would never take that advice. I felt physically ill, with tears that didn’t stop for days. We were broken.”
When Evelyn was a baby, she only used to move her feet. Her parents even gave her the nickname Happy Feet. However, recently they were devastated to find out that this quirk was actually the sign of a very rare and deadly genetic condition.
Sofia Sanchez was born with Down Syndrome. She spent her first 14 months languishing in…
Some time last Friday night I became middle-aged. One minute I was standing at the…